A North Wales family, where two brothers and their sister have Huntington’s disease, say there’s still not enough awareness about its devastating impact.
Jonathan Bennett, his brother Chris and sister Elizabeth from Wrexham, all have varying stages of the condition.
Their step father Ian says its a “heartbreaking disease” which they are currently powerless to stop.
The disease has a 50% chance of being hereditary and can affect motor skills, cognitive development and behaviour.
People with Huntington’s disease have a faulty gene that slowly poisons specific groups of brain cells.
But a consultant psychiatrist who heads a specialist clinic for Huntington’s in Wrexham says there is hope, as scientists work on a trial of what’s described as a gene silencing drug.